Pain is weird and difficult
Pain is anything that make you uncomfortable.
Tara described lots of different pains.
My neuro told me that the achey dull toothe ache is active CIDP.
I have that all the time. Its inflammation pain in my case.
The less pain meds the better because it hides what your feeling. I was
doing 35mg codene at one time and was probably relapsing and didn’t know it.
when i come down off the codene, I was about screaming in pain. so therefore
it got worse and I didn’t know it cause I was so doped up.
Sometimes when your healing you may feel the pain of something else. Like
I am starting to feel meniscus pain. I was told I have a moderate rt meniscus
tear and have never felt a thing. Now as I get better and better, I am feeling
what they told me I have, a torn Meniscus.
Unless you have had you entire body MRI’d or xray’d some pains may be from other
issues like disc, spurs etc. I have had my entire body MRI’d so I know whats going on
at every joint. and why I may feel issues in different locations.
I also have three bad disks in my neck two bulging one blown out. so I understand the pains
associated with that. I have arthritis in one great toe, so pain from there is expected. etc.
I have a heck of a time trying to figure out what is from what. Drivin me Nuts.
I can’t imaging what the moms and dads of CIDP kids do to know their child and what they are feeling. Some probably develop Que’s to know when they are having relapse and such.
At the end of the day its about treating the pain and knowing if your relapsing so adjustments can be made. We are all like snowflakes. No two are the same.–tim–