Ohh dear! You really are having a time. Sepsis is very dangerous. You know? We have all the Neurologist out here in the World but yet only a few deal with CIDP. Such a shame too for we have so many that have CIDP or GBS out here in this world and not enough trained Neuro’s to handle the problem. MS, Stroke, Epilepsy and anything considered easy to diagnose we have plenty of doctors to go around but just not enough Specialist for CIDP. Just like in my area. I am going to have to travel 3 hours to and from just to see one of these doctors. And then if he or she is not worth it, then where do I go? John Hopkins is a drive, University of PA is a long long drive and my State only has a few to go to and I hope I am lucky and see a good one the first time around. Scary when we think about it! Good luck and I wish you my best and hope you recover soon! Hugs
I have had simular problems too. Took my neuro 3 weeks to do a referral for me to get into Duke. Have no idea what he placed down but am upset due to a waiting period at Duke. Seeing my regular doctor today and going to have a long talk. My neuro has not even done a spinal on me either. See him Sept. But am going to ask my regular doctor to get me in to have one early. I feel for you. Really do! He might be waiting to see if this medication helps. With this nerve damage stuff. Sometimes they play it by ear and see if improvement happens or relaspe. Keeping you in limbo! I know how that made you feel. Very hurtful to someone that is sick or has someone sick. I just don’t see any human compassion anymore like I used to! Go the the ER and did this past week and they came out yelling ” 385″ Number 385! I turned from Linda H into Number 385.