Oh Dinosaurs! Me? Cranky? NAH! Never!

OK you are in constant pain, from one thing or another, and NO ONE KNOWS?
Excuse me doctors, PLEASE CAN YOU SORT THIS ALL OUT????? Or the like.
And, what makes it all truly freaky? It just keeps getting worse!
Good that the PP WORKED! Great that the Mayo is gonna give you a once over. Gotta warn ya tho? That they are very, very stingy [from all I’ve read] about IVIG as a help w/all this. JUST BE SURE to get copies for yourself of ALL the test results and write ups!
After that? Either your current neuro is gonna be backed into a ‘professional status’ corner? Or, you are on the ‘second opinion’ train, to find a neuro you feel you mite be able to work with.
Best phrase about this? Is: We haven’t been communicating well. Then leave it at that. Here? You can complain, but docs are worse than old maids in talking to each other! Maybe best to find new neuros who work out of hospitals your current neuro does not work in?
Lastly? You don’t have to apologize for for your crabbiness to me! I have seen much worse consequences of sudden medication withdrawal in others and at times, it can ruin lives. Getting it out, is healthy in a way? It helps YOU realize that some very major changes were happening to your brain. It’s both a scary and amazing thing. It does tho deserve respect on your part to really learn about your meds [web up each med: ‘prescribing information’] and READ IT ALL! It helps keep you alert to changes, even subtle ones, that can and DO go on in your mind and body.
Ultimately? Take everything you learn, and what your docs say with hefty grains of salt. Then, find your own way thru the morass of ‘multiple medical issues’! {BTW? I GOT ‘EM too!} Hugs and use, if necessary some ‘duct tape’ to help keep it all together!