I am responding to your email that says that there has not been any improvement in six months.
There is a doctor by the name of Robert Armstrong in San Jose CA. He has a world wide reputation and is in charge of infectious diseases for Good Samaritan hospital. Good Sam is among the very best hospitals in the U.S.
Dr. Armstrong had GB personally and is described by the Good Sam staff as a Dr. House.
I would contact him and see what he advises.
He handled my wife’s GB and we feel saved my wife’s life along with ensuring she will recover.
Hope the above helps.
If you have trouble reaching the doctor, send me a message with your contact info and I will help connect you and he.
Thanks Again everyone, I definately will keep you all informed regarding my eye. No problems since last Sat. however I did break out in a rash on the palms of my hands and bottom of my feet and under my bra line, now its kinda all over me. Called my Neuro and she said it definately could be from IVIG. She said she would have to stop the treatments. I’m scheduled to have another one next month. I really am afraid to stop them but she
said maybe, she might try 1/2 dose with Benadral. My treatments take about
7 hrs. to complete so I don’t they are given too fast. Anyway, I told her I
would watch it and see. She said she only had one other pt. this happend too, and that I was responding well to the treatments (which is good news)
I have been pretty much pain free for the last 3 weeks now. I can’t believe it.
She said @ first she would have to stop the treatments because she wanted me to be safe.
My dose is 1. Gammagard 94gm/E5W190ml IV every 4wks over 7 hours.