not wrong

October 30, 2006 at 8:55 pm

hi pam. you’re not wrong. i wasn’t completely paralyzed either and they caught mine after the second spinal tap right before having to be vented. so call it what you want. it is what it is. after my chemo. all treatment stopped too. i’m asleep from the nose down with left hand partially pralyzed as well as both knees. i carry a full medical list with me because there are too many issues to fit the bracelet. i still say i “have” gbs when people want to know what’s wrong with me. they never called it cidp in my case, but it was severe. but i like the idea previously mentioned, if you wear a bracelet, spell it out; because most emt’s or er docs wouldn’t know what gbs is. good idea!!