not much to add
This is a great thread for caregivers. It’s also great for patients letting them know it’s not abnormal how they are feeling.
The thing that gets me most is people say I look fine and think there is nothing going on. If they could see the nerves firing inside maybe they could understand.
I also wish they could understand the stamina issue. I used to be very active and strong, well everyone that has GBS knows what happened to those skills.
The jealousy factor and resentment because I’m not at a 8 hour a day J O B !
It gets really hard to deal with because the same people and (family) were so behind me , but now that I’m out of inpatient it seems like they expect me to be like I was and be able to do what they were used to me doing.
I want to thank Ali for starting this thread again.
THANKS ALI!
Tim