No IVIG This Month

December 25, 2006 at 12:58 am

Since my relapse in April 2006, I had been in “remission” for 12 years. I had very bad bouts of pain and I was given different types of pain pills, shots, physical therapy, etc. I was told it was not the CIDP again, but I have my doubts now.

Since April I have had IVIG every 4 weeks. My IVIG was due on 14th & 15th of December. The week that it was due I started to have numbness in my left foot, pain again, it progresses every few days. Today, right now I have numbness in both feet, pain in my arms, and numbness while trying to type this. It is also more difficult to hold up my head without support, of course right now, I wake up feeling pretty good, but by the end of the day,things change.

After saying that, it is not as bad as it has been in the last few months. I plan to call my doctor after the holidays and let her know the progression. It is scary not knowing what I will wake up to everyday, but I have high hopes that it will be okay. I am still on 10mg of prednisone. I guess there is no perfect time to see what will happen when the IVIG’s stop.

[COLOR=”Red”]Happy Holdays and God bless to all!!![/COLOR]