No improvement yet !!

March 10, 2011 at 10:53 am

I was diagnosed with CIDP the beginning of March this year. They caught it early. I walked with no aids into the neuro’s office and straight into the hospital where 4 daily infusions of IVIG was waiting. I was discharged and started a 6 week regiment of weekly IVIG infusions with Solu-Medro. I just finished my 6th infusion yesterday. I stumble now walking with a cane. Now my GP wants me to go to Physical Therapy, when I can’t hardly walk. I feel like a golden goose with a rich HMO in my back pocket. I don’t know if I am expecting too much too soon or have too much time to feel sorry for myself. As far as talking to my GP, he is a great guy but knows zero about GBS or CIDP, my neuro has about 45 seconds to answer any questions (if that) I ask and off to the next patient; she is very intelligent and knowable of GBS and CIDP. However, I haven’t seen her in almost 2 weeks and not scheduled for another 4 weeks, no contact for 6 weeks during O/P treatment. I don’t know what to do and who to talk to. I am 68 years old and have always been very active even after GBS in 2002. Should I push not to waste any more infusions and progress to the next treatment option.