newer member

April 16, 2011 at 11:51 pm

I just had my first ‘booster’ a week ago. Some fatigue, but I don’t know that it was because of the infusion. I tend to push myself, so it may be that I have not yet learned how to pace myself properly.
The first, the 5 consecutive days of infusion, I loaded up on water for two days before the first of the 5. The only problem I had through the whole course was a slight headache after the third day. I realized I had consumed more coffee than water that day and a milkshake with lunch after the treatment. So I pushed more water and the headache went away.
After the final day, I was quite tired and went to bed two hours earlier than the norm. I was really quite tired for several days afterward, but eventually gained back some stamina. For the 1 1/2 weeks up until those first treatments I was losing some sensation almost daily. That stopped after the third day, so I am very thankful for the treatment despite those few side effects.
I’ll be having one ivig treatment a month for 6 months. I am praying this will be all I need but realize there are no guarantees. Physical Therapy is helping with balance and muscle conditioning.
I hope your experience is great. Thanks to all of you who post here!:)