Sorry I’m late at reading this, but since I have CIDP, I don’t read through the GBS forum too often. I’m another person from Long Island, New York. I was diagnosed with CIDP in 1998. I don’t know if I’d be a good one to be considered because I’m a very introverted/inhibited person. I have not ever been able to stand up in front of people and talk. My nerves and the stress would do ALOT to me. The neurologist who treated me the longest and who knows me the best, is no longer in New York. My new neurologist has only know me for four months and would have no concept of how I was and how far I’ve come.
I’m always willing to try. I’d be willing to take the first step and talk to someone from the TV show, but my previous neurologist would be the one who would have to be involved and I don’t know know if he’d do it. I am too inhibited/too introverted to ask him.