New Rituxan Study
Yesterday I finally met with my new neurologist, Dr. Weiss at the University of Washington Hospital in Seattle. He is very knowledgeable, likable, and has experience in research with antiMAG IgM neuropathy. We are pleased to have found him. He told us about a new double-blind study showing the effectiveness of double-dose Rituxan in treatment resistant antiMAG IgM neuropathy. He wants to do an EMG in 2 weeks to establish a new baseline and to see to what extent the demylenization has led to axonal damage.
After that, we will decide on a treatment plan. If there has been too much damage of the axons, an aggressive plan may prove relatively useless. If, on the other hand, axon damage is minor, we may first go forward with the double-dose rituxan. Another alternative is plasmapheresis followed by a course of cyclophosphamide (less than typically give for cancer, so with fewer side effects).
BTW, Andrew, it is beginning to look like we will be in our new house by December. It is about 30 minutes north of Seattle (Mill Creek). If there, we can put you both up in the guest house. Just let us know.