Nerve regeneration

June 17, 2011 at 10:53 am

Great info particularly for someone as impatient as I am.

PS I read on the forum that cyclosporine worked when the standard treatments did not so I recommended cyclosporine treatment to my neurologist (Cyclosporine was on his list of possibilities )

I have been on cyclosporine for just under a year (100mg/day) and I am improving. The Columbia Univ. info gives me additional hope that the improvement will continue.

Nerve regeneration…

April 23, 2011 at 12:28 am

First off, there are the sensory nerves & then those that send the signals to the muscles to make them work. If one loses function in the sensory nerves, it will involve loss of feeling. The motor nerves (as I call them) will involve the actual loss of motor functioning, such as weakness in the limbs so common in CIDP. Hard to tell if the tingling is actual nerve regeneration, the only way to tell is if one feels stronger, or has feeling in an area where one didn’t have it before. If you can do more with your hands than you were able to before, obviously the nerves have seen some repair or improvement. If you can walk up steps easier than you could before, obvious motor functioning has gotten better. The other way to gage improvement is by having EMGs or NCSs done by one’s doctor, & then compare them to the last tests done. Hopefully I made this simple enough…