I really believe that what you are feeling at night is just your body’s reaction to having CIDP, not the nerves being damaged more. If they were being damaged, you would wake up with less function, like more difficulty walking? Maybe you need some sort of anti-anxiety pill to help you relax & quit worrying so much about what might happen down the road. If the IVIG is working for you fairly well at 21 days, there is no reason to suspect that you will be in a wheelchair or bedridden down the road. Some here have been on an IVIG routine for years with no changes. We just can’t live our lives with a “what if” attitude, or we would all go crazy, & I mean that in a nice way.

Hello! I feel the same way….fatigue is unbarable most of the time. I hate to say this but my 4yr anniv.for gbs is the 22nd of this month. the pain…..

i have GBS but also have nerve damage in my legs i live in charlotte NC.was doing pt. at first trying to walk without my AFOs. Now that we know the extent of the damage that is no longer an issue. seems the afos are permanent. I have been discharged from pt. starting a program at the Y.I know how frustrating drs can be they kept telling me my symptoms were in my head. they even stood me up on the side of the bed and let me fall to the floor. Once that happened it dawned on them there must be something wrong.
Amy