Reply To: 7 year old female with CIDP

Did not answer all of your ques. Cell Cept is not like pp. PP filters the plasma, cell cept is a immunosuppressant drug. Yes, you get the treatments before a relapse, the idea is to stay stable, no attacks, so that healing can start. The reason the reaction is instant, because at this point, the damage is probably just an inflamation on top of the myelin sheath. If left untreated, it goes throungh the myelin (protective coating on top of the nerves) and penetrates to the nerves causing axonal damage) You are on top of this and she is being treated, so that is not going to happen. Is your doc responsive to your suggestions/ questions? That is the most important thing. Don’t waste time if you don’t like him and go to the next doc. It took us 4 docs and a few mis dx. till we got to this doc.
Dawn