Reply To: Confused

Hi Tom, I had GBS 25 years ago and the tingling has come and gone over the years. I had tingling and numbness in my fingers and toes (mostly in the toes) for 4 years straight after the GBS. Then it came and went. It has hit again in the last 2-3 years with a vengeance. The nerves are damaged and for some of us this will be a life long process. It can be annoying for me at times. If it gets really bad, that tells me I need to rest. I put my feet up for awhile, sometimes literally:D , and take a day to just veg. It seems to help a lot.

Glad to hear you are doing the gym. Just be careful to not overdo it. Remember it takes the nerves up to 5 years to repair and if you over tax them, it can cause some of what you are experiencing. Exercies is good…in moderation!