Reply To: newbie with questions….

June 5, 2008 at 7:07 pm

Hi David,

Welcome to the forum. I had GBS 25 years ago and I still have tingling and numbness in my fingers and hands, so yes it is normal…annoying some days, but “normal for me!” I also get the sensation of electic shocks going off all over.

GBS is an auto immune disorder often preceded by a virus or food poisoning. The body, in essence, turns on itself and destroys the myelin sheath on the nerves. We are all told we should not get a flu shot as they do not know what virus lead us to get GBS in the first place, so I personally will never get one. I have no way of knowing if any of the viruses they inject into us would cause me to have a reaction and get GBS again. It is rare for people to get it twice but it does happen. Because it is an auto immune reaction, it is not hereditary so you can stop worrying about your daughter.

High blood pressure has not been an issue for me but I have read here on the forum that others have experienced problems, and they can correct me if I ma wrong, but I do believe it is somehow tied to IVIG, something they did not have for us 25 years ago. There are a couple ladies who are here on the forum who are very well versed in IVIG,, how it should be administered and all the side effects. You may want to do a search or I am sure they will see your post and add in here things I know I am unable to speak to.

Keep well and continue to rest. It helps alleviate some of the tingling and numbness. I find mine is worse when I am tired.