Reply To: New and confused

May 15, 2007 at 6:45 pm

We are confused too! We did not have any ivig for five 1/2 months and then we had some weakness. We were given more ivig and currently are in the process of figuring out if we have residuals from gbs or cidp. As Emily’s mom mentioned, if you have not had any additional ivig, I too would question the dx (as we are) Go to a different doctor, get a repeat ncv/emg to compare to your first tests, see if there is any change, better or worse, we attempted to do a repeat l/p with my son to confirm another cidp episode. (failed, intern could not make the puncture) If you cannot be certain, as we are not, maybe additional ivig would be warranted to stop any progression if in fact it is cidp. This is what we are doing until we are sure. Good luck in this land of confusion! Dawn, Kevies mom 😮