Reply To: New to the Forum

Anonymous
May 2, 2008 at 9:30 pm

My daughter was dx’d at 4 with MF-CIDP.

I have a few questions. At what age were you when you were dx’d? Do you feel that you are progressively getting worse? Have you had any immunizations lately?

There are a few different possibilities, as I see it.
1) It’s residuals
2) It’s a recurrence of your GBS. Although this is rare with only a 3% relapse rate.
3) Being around the germs is just making you feel sick.

If you are progressively getting worse then I would say that it’s not residuals. And if you’ve had immunizations then they could have brought about a relapse of sorts.

I would find a REALLY good neurologist and ask him/her to do an EMG & an MRI w/contrast of your brain. If you do indeed find a good neuro then he/she may want to also perform a spinal tap to check the protein in your spinal fluid & also do an MRI of your back with contrast.

PM me if you have any questions.

Good luck,
Kelly