Reply To: TO RHONDA AND RYAN, and others interested in how BAD CIDP can get

Pam,
Thanks for your note. I was recently reminded of KathyC and her struggles. And the fellow from PA, I forget his name, but he got hit hard, and never really bounced back.

As many others have said, it might not be the CIDP, but its complications that are the final straw. the medications are very hard on a body, and the emotional damage a chronic disease does can be equally severe.

Regarding ALS, there is a specific test that rules out ALS, and the actions are similar, but different enough to discriminate.

CIDP is not a fun diagnosis. I don’t want it. But I cannot give it back so I must learn to live with it.

I need off my soapbox.