Reply To: Hi everybody!!!

Vic,

It is hard sometimes to get that understanding from others. I don’t want to be babied or treated any differently. But I do need people to understand that I have limits as to what I can and cannot do. My family is pretty good about it now. My wife and kids, I mean. When I tell them I need to sit and rest, they let me. When I need help, they usually give it. And when I need my space, they clear out. BUt it was a joined effort to get us this way. They have seen me driven to bed for a few days in pain, and hey have seen me do some good things as well. When I can’t walk and need my powerchair, they help get it out, and don’t seem embarrassed that their Dad isn’t walking. I did a campus tour with mt daughter at UNC CHapel Hill. I rode all day. She was pretty good about it.

Other people are not as accepting all the time, but then I try to understand that they don’t live with me and understand me.

As for us here at this site. I am so grateful for so many people who deal with CIDP everyday. We all can understand each other. There have been many times I needed to vent some frustrations, and it still gets frustrating. So many times I have needed information, and people here have shared. Once I started sharing with others the successes I have had, it makes me feel better as well. If we can help each other, we help ourselves. That is what makes it good here.

There is always something to learn each day. My neuro’s have been good to me, but there is no better understanding than right here.

I’m in North Carolina. What part of the world do you hail from?

Dick S