Reply To: Newly Diagnosed

September 1, 2011 at 2:53 pm

Hon, I am so sorry for all you have been through, and are going through now.
Giving you lots of gentle hugs right now (((( ))))

It seems to me that the docs have twisted things around… it was they who didn’t understand how serious your case was from the beginning. It’s really preposterous that all their tests came back normal, but yet your body was obviously presenting extremely abnormal symptoms in all that time. This has happened to many of us, and just shows how little some docs know and do about these cases. Well, things are finally happening along the right course in your case, and that’s good.

And don’t despair; we are all in this confusing and difficult situation together. A lot of adjustment is necessary as we face this condition, but life goes on. You’ll see. Check around on this site and you’ll find us living our lives, even though we have a ‘new normal’.
Praying that you will find and learn practical ways to cope, and for the utmost benefit from your medical treatment.