My trip to Chicago

January 31, 2011 at 11:25 pm

Well … I went to Northwestern for an evaluation and was told no at this time. I understand as I was a little concerned that I had not been on the Immuran long enough to say I failed two protocols (requirement for the program). Anyway, my neurologist still thinks I will make a good candidate and he is working with the doctors at Northwestern to take their suggestions and see what happens. I’ll be slowly going off the IVIG as the Immuran is increased. Everyone pretty much agrees I would be a good candidate – just need to try another thing first.

I did get to meet Jon and Robert (and Alice met us there) and so my personal connection to CIDP and the stem cell clinical trials just gets stronger – I truly believe I will get in this year and that it will work. I’ve seen, up close and personal, its success and I want the same!

So it’s all good and I can wait my time.