Almost all of my pain is around my bladder and stomach. I have had pain for two and a half years. I am convinced it is nerve damage in the lining mostly where a hernia would be. The pain is always there. Between Neurotin and Tramidal I get by OK. Because it was not the normal thing that normal people with CIDP it took months and eleven doctors to finally figure it out. Keep going until you find a doctor who will get the best treatment and the best pain management without too much pain medicine
I too have had CIDP two years this month. Mine started and continues almost entirely in my bladder. Actually I am convinced it effects the lining of my chess cavity and moves around. This is why it took many doctors to determine what I had as it didn’t fit the medical book explanation taught in school. I take IVIg every 28 days and Neurotin and Tramidal and manage OK and tannkfully seem to be steady. While I was trying to get a dianosis my doctor was honest and told me if I ask 10 doctors you will get 11opinions. I think he was right.