my daughter has CIDP

November 9, 2006 at 4:52 pm

I am sorry for what you are going through. My daughter is now 10 years old, she got CIDP around 9 – 18 months old. I guess I was kind of in your Mom’s position because Abby couldn’t tell me or discribe what she was feeling cause she was so young. Talking to others who have CIDP has educated me the most. The GBS Foundation has some pamplet on GBS/CIDP caregivers information and ungerstanding, there is also a DVD that is on CIDP the foundation will have available soon.

I know it sounds like your Mom is not ready yet but if you ever feel that talking to another mother would help, Just send me a private message with your phone number and I would love to share with her.

You have found a good place here on the disscusion boards, everyone here is willing to share information, advice and even jokes, Welcome.