MS medicine

December 10, 2006 at 8:49 pm

My 17 year old son, with CIDP, has been injecting avonex weekly for 4 months now. He is still taking prednisone, but that is to be decreased soon.

We were told by the try avonex for a 6 month period and then we will reevaluate. Side effects, which had been severe (flu symptoms for 20 hours), have decreased substantially. He has found by altering the injection time, that has made a great deal of difference. He know injects himself at 3 p.m. on Friday after noons. Side effects are now minimal. If he gets the injection at night, side effects are severe again.

The jury is still out on gaining benefits, but we will continue until we revisit the md. in Feb. IVIG monthly for one year did nothing. Cellcept did nothing. For now, we have hope.