Misunderstood

Hi Lori
you are so right, this disease is unbelievably misunderstood and misdiagnosed! I went twice to the hospital, one doctor and one urgent care clinic in addition to two neurologists. I got a second opinion because the first neurologist suggested “arthritis”!!! I just didn’t buy it.
My symptoms started the same night that I recieved the vaccine, with tingling and stabbing pains in my legs. Unlike many I never lost my reflexes however. The docs wanted to match my symptoms to a very small minded preconceived notion that all GBS cases are identical, which they clearly are not. The first neurologist actually laughed at me, stating that I absolutely did not have GBS because my reflexes were still intact, yet he refused to test me for it. I think he was afraid he would be proved wrong. I was met with great confusion by the medical community. I was shocked at how little they knew of GBS. The original doctor who gave me the vaccine was offended at the suggestion that I contracted GBS from her shot! She dismissed me altogether. I am still annoyed at the ignorance and hope that in time it will be understood better in order to help alleviate the stress and pain that many suffer due to it.