Lots of very good things said here!

First off? Anger! That kind of goes with the whole ‘depression’ thing, doesn’t it? My docs would for the first year or two ask me ‘if I was depressed’…I could only respond sensibly with: If you had this? Wouldn’t You go thru some depression? Then they’d offer some anti-anxiety stuff [things I do NOT get along well with] and I would decline. Honestly, when your life throws you such curve balls, you are supposed to cheer? I don’t know about anyone else, but I simply try to make the best of this situation.
Second swollen hands/feet? Most of the time, my hands/feet FEEL much more swollen than they really are. Almost arthritic at times. The best thing I can suggest is what I do to help things along… I hand massage any really noticable swellings [mostly in my ankles and partly due to prior plain old injuries] I massage UP the leg and I’ve had therapists do it to the point that swelling disappears- helps the circulation. It doesn’t take that ‘feeling’ away, but it sure looks better!
Third, Hair Loss? Wow! Did I EVER have that right after my onset! My skin turned to paper and would flake off in large bits, like big snowflakes. And my scalp too-tho with hair to boot! That is when I KNEW I was more sick than my first neuro’s diagnosis-changed neuros, got right diagnosis. I used common sense and would literally slather hand lotion on my head for hours, then switched to a mild dandruff shampoo and super restoring conditioner. For my skin? I use the mildest yet most effective lotions I can afford. I can slather lotion on my arms and it’ll be GONE in less than 10 minutes! All soaked in. My autonomic body systems do not produce body oils naturally any more-and well, you have to compensate for such losses. Somehow.
Last? About waking up sore? Do you move much when you are asleep? I think this could have something to do with it, tho I don’t know what. When I’ve a restless night sleeping? I am able to get up and move about better in the morning. Makes no sense but it happens.
Everyone else here is much more wise than I am tho… but I hope this helps a little?