long road

July 29, 2008 at 9:26 pm

I first noticed symptoms the week after I had a minor surgical procedure, just having to hold on to things and thought I was just weak from the surgery. During the 2nd week my aunt died and I was having to have ppl help me walk around the funeral home, still I was just thinking I was still weak. Then I started falling and couldnt get back up, could not get up and down off of couch or toilet without help.Started using a walker until I kept falling while using it. Six weeks after the surgery I was in a wheelchair.My family had to roll me over in bed, shower me, help me to the bathroom, and dress me. I lost my job and my insurance so never received any treatments. Doctors just thought I was goin to the ER for pain meds. One neurologist diagnosed me with diabetic neuropathy. Finally after 15 months my ob/gyn contacted a medical school friend that is a neurologist that agreed to test me for free and at that time I was diagnosed with CIDP.It has been over 3 years now since onset. I am learning to walk a little on my own because I cant afford pt.I have foot drop in my left foot so I really have to becareful. I started receiving disability 6 months after applying but I had to wait 2 yrs to receive my medicare. I am still not receiving any treatments because I cannot afford to pay the % that medicare doesnt pay. But I am goin to pain management to help with the pain. My body is just having to heal itself. I would say I am about 90% better than I was.