Local woman with GBS here…

Anonymous
October 24, 2010 at 11:53 am

There is a friend of mine from my hometown who was hit with GBS just recently. She had symtoms for a few days & did go to the hospital where she was dx with GBS right away, via EMGs & her symptoms. She deteriorated very rapidly & had to go on the vent on Oct 14th. I read yesterday (her family posts daily on Caring Bridge), that she was unable to close her eyes, a further deterioration in my mind. She is 56 years old & was in great health before GBS, but she had had a sinus infection for 3 weeks before she became so ill, & had recently been dx with Sjogren’s as well. I am trying to help the family, as GBS is rather rare around here, but I had a severe case of CIDP, which is different in many ways. What should I do to help out this wonderful family? Also, I would love to hear from others who have been where she is right now, as I was never on a vent & feeding tube. Please, any suggestions would be most welcome. I have to admit that this post scared me, as I never considered the idea that Sally could actually die…