Julie and all, thanks for the thoughts about this especially the positive ones. I also often feel like it is almost an obscession–since life has changed so much and I feel like I have to think and double think anything I do now–how much will it “cost” in fatigue and in ability to do other things today. A lot of sponteneity has been lost. I was watching a lady the other day as she scurried around doing things and I was so envious of her freedom to not have to worry about how many steps it took or energy in movement. It is like this took over my life and squeezed out most of the fun in life, the sponteity in life, and a lot of the hope in the future–definitely most of my ambition and a lot of pride–in grace as well as being to “fit in” with others. I have never had health issues that persisted before. I spend a lot of time thinking about this illness and how to “live” despite it and what to do about this and that aspect of it. It is getting easier, but it is still so un-natural. thank goodness for work.
WithHope for a cure of these diseases