Leg and feet color

April 26, 2007 at 10:04 pm

Nate is 16 mos out from GBS and he has always had the purple red feet thing, when he sits with his feet down. He never had it happen til he got sick.
They told me that it is blood pooling in his feet. If he puts his feet back up or level with his heart, it goes away again.
It has to be related if you didn’t have that happen before you got sick. The docs just might not have a good explanation as to why it happens. They don’t know everything and when you come at them with a weird one, they don’t always know what to tell you so they say its not related.
I have seen other posts that talked about it also. The one person said the more he moved around, the less he got that.
Trudy, natesmom