Marcia I have you and your husband in my prayers. One thing I wanted to warn you about is the therpy.
99% of the therpists have NEVER had anyone with GBS. Question his therpist. Find out how much they really do know. I was my therpist 1st GBS Pt. He did study about it in school and also spent extra time learning. He was good and he and his assistant listen to me. All the therpists learned from him and watching me.
It sounds as if your Neuroligist does know about GBS/CIDP. Remember everyone he comes in contact with in treatment question them 1st. and remember NO FLU SHOT OR NEUMONIA OR TETNIS SHOTS.I got mine from the flu shot.
May Gods blessings and strength be with both of you. (Lakoda)
I am on my 2nd year of recovery.As all have said the anger is something we have to deal with. What I did was put my anger into recovery. I made up my mind I was going to get better.
Today with Gods blessings I am walking and almost back to normal. I am one of the few blessed ones that had a mild case.
In you letter and replys I keep seeing your Neuroligist and husband coming up. If you are unhappy with your doctor then get another one. If he has to brag how good he is then I would definatley worry.If a doctor has to brag how great he is then that tells me he is covering something.
In the 1week of finding out you had GBS were you put on five days of IVIG???Most of us were.Therpy was my link to walking and stop useing the walker–cane and start useing my feet. NEVER STOP THERPY as long as it is offered to you.
Your husband. I was so furious at your husband allowing you to do things HE should be doing. Why did you have to sell your car why isn’t he working. Why isn’t he giveing back to you who from what I have read have supported him most of his life.
NONI NOW is the time you put NONI as number ONE. Carolyn said it as I am saying it.Stop trying to save a ship. The wood is rotten and all you are doing is allowing yourself to go down with it.Noni do for your self. Anyone who is not loveing or careing or supportive let them SINK.
You have a loveing–careing family here. They carryed me and now I help them carry others. We will be loveing and careing and supportive and it all comes from the heart.
I have you in my prayers Your unconditional friend (Lakoda)