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July 13, 2009 at 4:36 pm

Hi Linda

You have me hopeful for the first time in four years. I was dx in May 05, but my Neurologist left the area. I have “shopped” the area for a new one, but to no avail. Tried Mayo in MN> got no relief. I have not had IVIG since 07 and now am off all meds, as nothing helped the pain. The pain is not as bad as in the beginning, but it is there 24 – 7. I talked with my druggest today about Namenda and she could not find anything about it treating Neuropathy. I am going to get an appointment with my internal med. Doc and see if I can talk him into it. Do you have an info I can direct him to regarding its use for neuropathy or perhaps he could contact you med center.
I am always in a wheelchair, have great AFO’s but cant walk or wear shoes due to the pain. Thanks for the ray of hope. Regina