I have read all these posts with interest and wish to add my contribution.
I contracted GBS in 1990 at the age of 51; my hands never recovered and it took me four years to learn to walk again, despite the doctors telling me it was a waste of time to even think about ever getting back on my feet. From the outset I determined to live life as normal as possible and I have fought GBS every inch of the way ever since. If I had not done so I would never have walked again.
Four years ago my health started to decline and I have been diagnosed with axonal degeneration. The difference in the last six months cannot be explained away by the gradual process of getting older. Post GBS is alive and well and living amongst those who have had the illness for any length of time, let no healthy super fit doctor persuade you otherwise.
A year ago I was walking 2 miles three times a week, but today I am struggling to cope with 440 yards. This is not “gradually getting older”, this is the direct result of refusing to give up over the last 17 years, but if I had my life over again I would do exactly the same, because it is our attitude to adversity that makes us the type of person we are.