Keep Experimenting

April 24, 2008 at 8:47 pm

Hi there

I have been having IVIg for five years – we have changed the frequency often, from 6 weekly to 12 weekly (when the doctor was very concerned with $$$), but now I get it monthly and it seems to be working. When I say “working” – it keeps the symptoms dampened down so that I can function sort of normally.

I have tried prednisone but it didn’t work for me. I have been on Imuran for twelve months but I haven’t seen much change – but it seems to take quite alot of time to work from what I have heard.

But, you must keep trying, and don’t let your doctors stop because of money – if something like IVIg works for you then don’t stop! Don’t worry about being dependent. Well, I feel like that 2 days a month is not too great a price to pay for feeling fairly human again. I guess that you have to decide what the price is for yourself.

take care