Keep a journal
Jorge, hang in there…
I am 2 years post GBS diagnosis.
As mentioned earlier, we all have a wide range of stories, but we are all connected. I was doing quite well, even teaching Physical Education until I had some minor surgery which really set me back.
So I am back to therapy as I did when it all started. A friend in the medical field suggested I keep a journal each day after therapy and keep it up once I was doing exercises on my own. Although the progress seemed unbelievably slow…as I looked back in my journal I realized it was “progress”. There may be days you feel like you are taking one step forward and two steps back, but when you look at the whole picture, you are able to see you’ve come along way. I realized it when I started keeping my progress on a treadmill. Before GBS I was walk/running 2 miles , 5 times a week. My first experience on the treadmill during therapy was 5 minutes and I was holding on tight. I eventually built up to 30 minutes at a pretty good pace while holding 2 pound weights in my hand. SO it will come…you will learn the virtue of patience along the way and it’s okay to get discouraged. There is always another day. And always plenty of support here.
Hang in there, let the therapists set your pace.