Since February 2000 I have been on a schedule as often as 2 times per week. Originally, I was on a schedule of once a week. Whenever I have reduced frequency, I have had an increase in weakness.
However, I began rituxand infusions almost 1 year ago and now have rituxan once every 2 months and we have just reduced the IVIG frequency to once every other week.
I’ve been on IVIG since February 2000. I have always taken one 40g infusion every week of Bayer Gamimune N or the new formula Gamunex. I have had times when I was on more frequent – 40g infusion twice weekly – after a cold or other infection. In 2004 I was on twice weekly for most of the year and then again in 2005 for most of the year (usually late spring until just before the holidays). This was because CIDP for me is progressive.
I have never had any problems of any kind in other organ systems. I get blood work done every quarter checking liver and kidney fuctions and never had bad readings. Everyone is different, but I don’t think there is any worry about the IVIG causing problems. I suppose the possibilities of blood-borne diseases is a concern – but I just choose to have selective recall about that stuff (ie. I just don’t think about it). 😉