All these different doses!! It’s sounds like it is just like any other meds….everyone responds differently to different doses depending on the severity of their case….the main thing that I have received is that most are getting treatments every 3-4 weeks unlike my dad at 6 weeks. I am not sure what his doses are but it seems that you can safely go at 4g/kg….thanks for all your help.These are questions to pose to the docs and get answers to their reasoning behind their ways of doing things. Has anyone been treated with Cyclosporin along with IVIG?
Thanks
Beth

Thanks to everyone for the quick replies. This is a great site!! Very Supportive!
Did you have any trouble getting your physician to decrease the time between doses? Have you come across any articles that support giving IVIG every 3-4 weeks? I guess we just need to be bold in our approach and be patient with the doctors. I would think that when they don’t see significant gains with treatment that they would want to change the protocol, but they seem to be apprehensive with change. Anyways, what I have read is the patient should be given 2g/kg divided into 5 smaller doses of 400 mg/kg of body weight for 5 days followed by monthly IVIG of 600 mg/kg of body weight. I also read that the older you get you should not be given more than 400 mg/kg of body weight…higher levels not recommended due to cause of stroke, heart attack, etc…
Any written articles that support doses or time between treatments would be appreciated in order to show the doctor as a resource of information. Thank you all for your responses and I will have my mom check her emails and stuff to make sure she has gotten your information. Thank you!!

I believe my mom has possibly even talked to some of you…My Dad was finally diagnosed back in January 2008 or so. He did the prednisone and emeron route….got worse, and actually became sick after going to Disney and a week later got Sepsis. So they immediately took him off those medicines and have begun him on IVIG…He did his first 5 day start in the hospital and then 6 weeks later he had his second dose of 2 days. His treatments are 6 weeks apart….not sure what his doses are.

Beth