ivig and prednisone combination
loved all the inspirational helpful replies—thank you!!! yes, i have read that low dose or even “pulse” steroids are good options if they work for you. I just need to stick with this high dose for 3 months to see if they’re going to work and hopefully regain strength in my feet, ankles and calves. If successful then I can work on a maintanenece regimen.
Loved the post of what works one day–may not the next, one time may not the next etc… How true that is–even day to day i question myself on the prednisone–is it working or not–my biggest fear is i dont want to make things worse by taking it–then again i dont want to stop too early and never know if it would have helped. CIDP is a strange disease, when nerves degenerate they tingle and buzz and when they REgenerate they tingle and buzz–so how is one to know when the tingling is good or not good???