Is there such thing as too much IVIG?

January 9, 2008 at 10:25 am

My daughter is 19 years old and starting noticing problems when she was 17. It took a very frustrating year to finally get a diagnosis. She went to the Mayo Clinic in August of 2006 and they started her on IVIG twice a week for 6 weeks and then it has been once a week since then. She gets her treatments weekly and she receives 22 grams. Her stamina has been much better ever since she started the IVIG – the only problem has been that her strength has not gotten better, but she has not gotten any worse. Six months ago the doctor started her on Cellcept – she takes four pills per day on top of the weekly IVIG treatments. She saw her doctor a few weeks ago and her strength has not changed yet, but he did not expect any changes from the Cellcept until 6 to 12 months of being on it. She has been so frustrated. She has noticed though that her hands and feet have gotten some padding back, which we feel is a good thing. She had axon damage and I know that it takes a very long time to heal. She is an awesome young lady who is attending college in their pharmacy program. She wears AFO’s for her foot drop.