I too have Lewis-Sumner variant…
Hi Emseebee,
It is really just basically one side more affected than the other, (asymettrical {spelling…lol}).
All the same symptoms and problems of CIDP, just more on one side than the other, (I have my left side more affected than my right).
Though, I also have small fiber atrophy, meaning it has gone into my autonomic system, (autonomic neuropathy), and it is ravaging my guts at the moment.
I am getting plasmaphereses for one full week per month, which is helping with my motor nerves, but not the attack on my autonomic system, of which my Neurologist is trying to battle with meds at the moment.
You can keep doing searches every now and then using “Lewis-Sumner”, as every now and then something new pops up about it.
Good luck with your doctors’ plan of action…Kedaso