I have taken both

Anonymous
January 9, 2007 at 7:30 pm

Debbie,
The first time I got GBS was in ’86 and my doctor had me inject B12 into my thigh every other day, I think. It was methylcobalamin. I was able to walk the whole time but not well. I took other supplements as well.
The second time I got GBS was in September of this year and it was a lot worse. I could not get an appt. The office claims he is retiring and I know he isn’t. So I took the Vitamin Shoppe sublingual cherry lozenges as well as B complex capusles ( 100 mg 4 times a day) You should not take B12 or any single B vitamin without taking a complex. It tends to give you a deficiency in the other B’s if you don’t have a complex. I think it has kept the pain down as I did not need neurontin. I took acetaminophen when I had pain.
With my supplements I have been able to stay at home and skip the IVIG, PP, etc. WHen the breathing got difficult, I took MSM – it is great for breathing and it worked.
As for bringing this knowledge to your doctor, I found that 90% of the doctors are not openminded enough to listen. Good luck if you find one…and hang onto him!!