I am so sorry to hear about the poor care you are getting. Don’t know if you are anywhere close but I had extremely good results from Dr’s Parks and Lopate at Barnes Jewish Hospital in St. Louis. Barnes is a teaching hospital associated with Washington University and both of my doctors are assoc. professors that specialize in neuro-muscular diseases such as GBS and CIDP.

I am literally on my way to bed right now (have to cook for the entire family tomorrow), but I had very poor luck the 3 months I was a patient at Mayo. Get youself to the University of Minnesota where there are caring doctors like Dr. Gareth Parry. My treatment there was sooo different than what they did to me at Mayo in Rochester, MN…
Pam