I agree wholeheartedly with Dick about diagnosis time

December 29, 2009 at 8:30 pm

I thought I’d almost broken a land-speed record in getting diagnosed 13 months after onset and three neuro’s later? I must say tho? That at times, the testing early on, then later are key aspects – Plus blood and spinal work ups – to confirming a diagnosis in the long run. I did not have to deal with biopsies as I’d met the 7 of ten type of criteria established at the time for IVIG. I admit that I was lucky in many ways, but feel more strongly that IF I’d listened to the first neuro-who’d said it was just a ‘bad neuropathy’, I’d be almost toast now.
You have to take in all that you’ve learned, here and elsewhere, and process it to fit what your body is telling you! I wasn’t internet savvy when I’d persued my diagnosis? I just listened to that BODY!!!
Any good set of docs should do both a ‘CBC’ [complete blood count-in varying degrees] and a ‘CMP’ [complete metabolic panel]. Also, if you are a woman and in your 40’s+? Ask to have a full thyroid panel done? IF your docs listen to you. Try and get copies of these tests, Labcorps and Quest diagnostics are the two biggies that have web sites that can help you learn what these test results might mean-then look further. If you are female going thru pre meno or just thru meno… The thyroid can start to fail then and it’s absence of function can mess one up thoroughly! I mean both because of or in-spite of CIDP or other neuro problems. Just an example of things that go wrong that mite make diagnosis more difficult? Know that it’s never absolutely positively clear-cut! CIDP overlaps A dozen different neuro problems and that’s what makes it all so squirrelly. Have faith in your concerns and don’t let any doc discount any ONE of them! It mite be your key to diagnosis! Keep heart and faith in yourself that SOMETHING is WRONG. Then? Go from there.