How old were you when dx with CIDP

October 6, 2008 at 2:13 pm

Dx August of 2005, I was 47. I was treated with IVIG every month and Cellcept 1000mg 2 times a day. I recieved the IVIG for a full 2 years. It was stopped July 2007. I work 32 hours a week, (no more than 8 hours at a time and no call) as an operating nurse 32 My neuropathy in my legs bothers me if I stand especially in one spot for 20 minutes of so. I have not gotten any worse since I was first treated. My symptoms started July 2008 and I was dx August 2008.

My neurologist says Iam in a drug remission and even suggested I try not taking the immunosuppresant. Iam afraid the symptoms might return and I would not be able to work.

I attribute my success to a rapid dx and treatment.

Pam K