How does every one cope with this?

July 14, 2011 at 9:47 pm

[QUOTE=exosurf] Although the doctor thought I was pretty strong; I think strength is subjective…. My life revolves around the IVIG treatments and this terrible CIDP. I am still in the working force. How does every one cope with this? Has any doctor told you anything about remission from CIDP?[/QUOTE]
Never got a word about remission from my doc. It seems I’m learning more from this forum than from him. When I was still getting treatments (I stopped in April because I wasn’t responding) it seemed that my life revolved around them. I’m still lucky enough to be able to drive and work, however I’ve used all of my sick, personal and vacation time. I’m now on FMLA leave at work- but when that runs out I’ll have to miss work without pay. Coping with this disease is very difficult, but when I read some of the other stories here I feel lucky that I’m still (mostly) mobile. I can get by without my cane for getting around the house and work. I need it for anything longer than that. My balance is shot. My thighs, ankles and feet are weak and certain areas are numb. I have foot flop on my right foot which has caused me to trip and fall a couple of times at work- totally humiliating- but so far I haven’t hurt myself. This disease completely caught me off guard. I’m 56 years old. I’ve never had to see a doc for anything more serious than a sinus infection before. Anyway-here’s hoping we can all find more answers and encouragement here. Cheers!