hope things are getting better for you : )

i think the hardest part of cidp is that everyone who knew us how we were when we felt good just dont get it!!! I find thats been the hardest part—saying “im not up to that today” when you’ve always been active then in a short period of time the cidp takes it all away–its hard enough for us to adapt to–but then for everyone to just expect us to go on like nothings different–IT’S HARD—my thoughts are with you jojo. Lori