July 27, 2008 at 5:08 am

i have a handbook “for the lay person” from the gbs/cidp foundation. it’s been in my bathroom for months now, i keep forgetting to bring in new reading material……. sooooo i’ve read through the book more than a few times and it state that approx. 20% of all patients diagnosed with CIDP do not have elevated CSF.


March 9, 2008 at 10:05 pm

I’m Eric.
46 kinda newly diagnosed w CIDP? I’ve run the gammet of Prednisone, now IvIg and am feeling worse and worse, but praying about ot.

In my time in the Infusion Center, I’ve talked w about 8 CIDP sufferers, all of which developed the Disease as a reaction to a vaccine (apparently) BUT NOBODY DISCUSSES CAUSE!~

My son, Max is18, college bound, and, very much, his father’s son. Looks, genetics, etc. I WAS going to get him the Menengitis Vaccine (I’ve almost lost a buddy to it, as well) but I’m, now torn.

What is the Secret, here? GBS/CIDP seems to be common enough that some thought to cause and prevention must hasber been given?

Soerry toburden you, glad you are doing better *Thank God) but, your opinion? Doc says I ask to many questions “Just apply for Disability”



July 27, 2006 at 8:17 am

Hello Irene,
Welcome to your new family, where we feel what you feel. We’ll have to wait until you tell us about yourself before we can help you. I’m going to presume that you know about the UK site. You’ll see that some of the UK members are here too.