So true Seleene! So true! Last year I was on the internet researching trying to figure out what was going on with me after I got hit with an attack on my nervous system after having spine surgery! Wasn’t getting any answers at first and was really having a time. And went through a simular situation in the late 80’s before I got diagnosed with Lupus. I felt like I was trying to become my own doctor too! It is frustrating to say the least! Very frustrating! I know your pain but can feel for your son too! Not fun being sick with something and not knowing what to call it! Even worse is the fear of the unknown! I would rather know what I have so I can deal with it and except it than to not knowing nothing at all. I wish you my best!