Hi Deb!

January 12, 2009 at 7:11 pm

Hi Deb! I am going to try and send you some photo’s of my State of North Carolina. But my state is rather boring where I live. Alot of farmland! Neat idea though to share our photos! Have a great day today and i do agree about how many of us all over the world have the health problems we have. If I was healthy, I would travel the world! Hugs
Linda H

Hi Deb

September 30, 2008 at 11:50 pm

Hi Deb:

Like you, before all this (CIDP in my case) hit, I was making phenomenal money and well down to road to partnership. Now I am on permanent disability; and while it is wonderful that I have it, it is not the same. I agree with the others that you surely contribute in ways that you may not have before…even providing emotional support to your husband when you can.

My husband owns his own business, so I totally understand the “work all hours God sends” issue, as $ are sporadic – Ian works probably 80 hrs a week. For us, we ended up having to completely change our lifestyle, and I definitely want to vent from time to time, when I think about what I have “missed out on” in terms of comparing with my colleagues.

On the other hand, I have a beautiful son, a husband who adores me, and like yours, says “you didn’t ask to get sick”, and a house that we can afford and I don’t need new clothes or a new car, or anything, really.

But, my point is similar to Deans, but from a slightly different perspective. Could your husband work only 6 days a week instead of 7 (or something)?
He needs rest, in order to be totally on top of life — if he doesn’t get abit of down time, that is when accidents happen. You guys are lucky that it was only a warning.

Maybe there is room to change in your life just abit more…to give him a few hours a week that he can recharge his batteries? If your hub gets sick, then what happens?

Ian (my hub) tries to burn candles at both ends, and at his advanced age (he just had a birthday that starts with a 5!) he can’t do it anymore. If it is just a hump, then maybe you can tough it out, but it doesn’t seem sustainable for the long term….

Obviously I don’t know a thing about your situation, and I am not trying to tell you how to live. I hope that you take these comments as the support it is intended to be — I TOTALLY understand where you are coming from.

With hugs (happy to chat more on PM if you want)


Hi Deb!

August 22, 2008 at 4:05 am

Not driving as much as I used to. Only to my local doctors office and back. Other than that I pretty much stay home bound. And miss my driving alone! Driving made me feel independent! Now I feel dependent on others. Which can really make you feel useless! Maybe once I get on a CPAP machine that will help with the sleeping problems and the gabapentin will ease the pain some and I might just get better. We shall see! :confused:

Hi Deb

August 20, 2008 at 3:15 am

Hi Deb! What are pilates. Never heard of that before. Now you have me curious! LOL! I wished I could sleep! I miss sleep! Here I am up at 3:14 in the morning in the forum. Will eventually go to sleep but probably won’t get but a few hours. Then during the day will nod off in my chair.

hi deb

November 20, 2006 at 9:38 pm

hope this finds u well , its amazing how many of us think alike, and your right deb, it is what it is . some people say that it sounds like your giving up but i see it as facing the facts of the matter. to think back on what my life was before all this kills me someimes. sometimes i even feel ashamed that im not as grateful as i should be .i guess im still so pissed that this syndrom picked me to come out of . ok im going to stop griooin now and wish u a haooy turkey day !!!!